We got the results from Emily's CT scan on Monday. She is still looking good. She still has the mass in her chest cavity, but it is smaller. With Lymphoma it wouldn't be smaller if it had become malignant again. It is small and may be there for a long time, or forever. None of us care as long as it stays cancer free. She has other residual nodules that we didn't know about after the first scan, but nothing out of the ordinary. A nodule needs to be over a centimeter to be a concern and her largest one was 3mm. We all have them, Emily may have more left over from the massive growth that was in her chest cavity when this was diagnosed.
Besides the CT results the exam was fast and went fine. Mainly we talked about Phase 3 that we are going to start today with her 6MP pill. It's a smaller dose than the last phase. Then we went over next Wednesday and the hospitalization. Our NP made the reservation for 5 days as is standard for this visit, but we could be out in less time. As soon as her blood is to a certain level of Methotrexate, she can be discharged. It takes some kids 5 days. They even commented that since Emily seems to be blowing through this for now, that she may not have to be there that long. Since she needs Methotrexate both IV and IT she will almost certainly be admitted at Packard hospital at Stanford. There was an off chance of El Camino hospital for this procedure. We are going to have to do this up to 5 day hospital stay every other week for 9 weeks. I hadn't really done the math, but today realized that Emily will spend a good deal of her summer in the hospital. Last time we were in we had a private room, we probably won't at Stanford this next time, but I think Emily will have fun with a room mate if that happens. I hope that person is a good listener :-) (Emily loves to talk.)
Today was "Pajama Day" in Emily's first grade class, we were able to get back home so she could go to the last hour of school.
Labs Friday, update then.
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5 comments:
Dear Emily,
I loved seeing you today in those adorable cupcake pajamas! What a cutie pie you are! I hope you enjoyed "Read-In" Day! Your friends and I ALWAYS look forward to your visits. :)
Love,
Mrs. Smith
P.S. I LOVED the video of your interview and the "dance party" with you and Haley.
Hey Emily, I have cupcake jammies too!!! Are yours pink and pretty frosting colors like mine are?
YEAH!!! What wonderful news! Good luck with Phase 3. Pajama day is the best :)
What wonderful news about the mass being smaller! I can't tell you how appreciative I am that you are explaining this in detail because sometimes it's hard to understand what is happening. Emily is doing so well that it would have been a shock if the CT scan had shown a less positive result, but it's such a relief to get such concrete results that prove it. It's wonderful that she was able to go to Pajama Day at school. Say hi for me and tell her Grampa will see her today. I will be there next week during her hospital stay.
Love, Grannie
Emily, you continue to be so amazing. I loved talking to you in the office today and I am very excited to have you back at Country Lane. Your video is great and I loved watching you and Haley dance. I hope your ear is feeling better and I look forward to seeing you again at school maybe tomorrow or sometime next week.
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