We just realized that this week marks one year that Emily has been on maintenance chemotherapy. We can't believe it's been a year since we ended intensive chemo, and that we have been in this maintenance mode for a whole year. Maintenance mode means giving Emily a pill at 11pm every single night, waking her up, getting her to wake enough to swallow pills, and then putting her back to bed. We just keep doing this until March 10th 2010, and then we stop. There is no taper, no change, you just stop taking pills one day.
I remember Dr. Davis telling us on the day they told us Emily's official diagnosis....."Here is your protocol, you can see that every single day from now (March 2008) until March 2010 is planned out. One thing is for sure, there will be challenges along the way, we don't know what they will be, but there will be challenges, but it will work, hang in there. You may not believe this but we want to save Emily just as bad as you do."
Emily will have labs this week and next week as usual. On 11/23 she is going to be having a scheduled CT scan to take a look and make sure everything is OK. Those are hard because there is a lot of anxiety on the results. Hopefully we will have the results on wednesday the 25th before Thanksgiving.
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3 comments:
A whole year on this maintenance plan! What an accomplishment. We are so grateful and proud of the whole Pepper Family for getting through this past year. Now we can see that what Dr. Davis said was true: "There will be challenges, but it will work." We now can see the results! Keep us posted on the CT scan.
Love, Grannie
My, time flies when... well, it just does. You guys are doing an amazing job, made tough decisions under excruciating circumstances, and are raising one strong young lady. GO PEPPERS!!!!!
So proud of you guys, I still have not been notified as to where to bring the party hats, pony, and clowns.....
Gian's 2-year post dx (15-mos post treatment) is next Monday. Feels like yesterday and an entire lifetime ago, all at the same time.
Hi Chris,
It's been a while since I checked in and after reading a backlog of a couple of months, I'm glad to hear that things are going as well as can be. Once again, I am in awe of how strong Em has been and how your family has battled this together.
Wishing you guys all the best.
Brian
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