Emily had her procedure around 1 this afternoon, pretty much on schedule. I had a very busy work schedule today so I couldn't be there for the entire thing, but joined Tracy and Emily for the pre-op, and for Emily being put under, then I went back to work. Emily recovered from her procedure quickly. She was very hungry when she woke up and Tracy was prepared, as usual, with a snack for her in the recovery room. Then Emily was admitted to 1 North and got a private room ! She is currently getting hydration and will start the high dose methotrexate IV around 10pm tonight. We are hoping she gets out Friday night or Saturday morning, but as we have seen each time, it's almost impossible to guess how long she will be in. We may or may not be able to keep the private room, but at least we are on our "home floor" so the reasons for losing it would be because a child who is more ill than Emily needs it, in which case we would understand and gladly move.
The great news is this is the last scheduled over night hospitalization that we are aware of, for the rest of chemo. The next two phases are going to be rougher on Emily physically than this phase, but mentally this phase has been challenging to Emily and to the whole family. Just today juggling between having a child in the hospital and delivering performance evaluations at work is an example of what life has been like lately, and of course Tracy has just as much or more to coordinate on her end.
The next phase is going to start on August 13, we lost a little time with the delay. More on that later in the week.
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4 comments:
Congratulations on the private room. It is great news indeed that this is the last scheduled overnight in the hospital. I will keep my fingers crossed that problems with mouth sores are minimal so that Emily and the rest of the family can enjoy the respite between this phase and the next. With a little luck, she will be bouncing out of there by Friday night. I was surprised the next phase is going to be so soon, so have fun on your day trips or quick local sleepovers.
Celia
These chemo milestons are huge, really huge so congratulations on this one. I will focus my energies on a Friday release date. I can only begin to imagine how much juggling you all are doing to get through this so hugs to you both and keep on keeping on because you guys rock.
I am so glad you got a private room. hope all is going well today and that emily isn't too sick from her treatment. i am sending extra good vibes your way today :)
Dear Emily -
So glad you made it to a private room for your last hospitalization. Take care, little one. I love you.
Grannie
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