Emily's neutrophil count is rising nicely. She is at 568 today, and I would guess they will decide to resume Chemo next week though we haven't been told that yet. Tracy thinks she needs 750 or higher in ANC to resume. So right now Emily is "only" on blood thinner, Zantac, and septra. She will be taking Septra (antibiotic) every weekend for the next two years.
What has Emily been up to? A lot. This week she did some home school, had a visit from her Grandparents, went to school, went to her Brownie meeting, went to a play date in the park, went to the park with Haley and Tracy (They walked to and from as well.) Right now she is over at her school attending a performance the first graders are doing. She wants to be there to support her class. All around she is pretty active and feeling good. Macaroni and Cheese, specifically Annie's Mac n Cheese has returned as her favorite food. She didn't want it at all while on Prednisone, but ate it for breakfast, lunch, and dinner yesterday. We are happy she is eating at all. I think the break from the Chemo has made her appetite come back.
Emily got her wig from the Lymphoma society this week. It's made of real hair and came with some shampoo to wash it and keep it clean. It's a darker blond than Emily is, so to me she looks really different when she is wearing it. She likes it a lot because it is long, and she really likes long hair.
I am not sure if I will post again this weekend, assume no news is good news and have a wonderful weekend whatever you have planned.
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5 comments:
Everything sounds great! How nice that she attended her Brownie meeting and school performance! It is cute how Emily likes her new wig...Kaeli was the same way. Kaeli had two and neither were her color. She too looked like a different child. Tricked the nurses some too. With the real hair wig...I believe you can even curl it.
Have a great weekend!
Theresa
I rejoice with you for the wonderful "normal" moments that Emily has had in the past few days. That is great news. May you all have a restful and renewing family weekend.
Know that I continue to pray for you all.
Warmly,
Pam S.
So glad to hear that Emily had a good week and is getting do some social and school activities, that is really great! Here is wishing all of you an absolutely wonderful Mother's Day weekend. BTW Annies is Alexander's favorite food too! Sending big hugs your way.
It was good to see Emily so happy on Thursday when we were there. She made a point to surprise me with her new wig, and she looked so adorable in it. She really liked the long hair. I was surprised at how many activities she could do in one day -- school, Brownies, playing with her sister. She even painted by fingernails for me. She was in great spirits and seemed to have a lot of energy. See you next time.
Love, Grannie
So glad that Em is having such a great week. It must be nice to remember that she is a normal little girl. Sophia's ears must have been burning with the thought of the wig. This week she started talking again about how she decided that she wants to cut her hair and donate it to Emily. While I don't think you can do a direct donation, it is nice in thought. Funny, Sophia has really long (down past her waist) hair that is dark blond. Could have been a close match for Em's wig. Hope you continue to have a wonderful week and Mother's Day! xxoo, Lyn, Mike, Sophia, & Trevor
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