I have come down with the stomach "flu" and I am working on getting our taxes done so I don't have time for much of an update.
Emily went in for her Labs, CAT Scam, Ultrasound, and X-ray today. The only results we know are from the labs, and she is looking as expected with those results. Tomorrow we will hear about the Ultrasound from Hematology and talk about the clot. Tomorrow Emily has a PET scan.
On Thursday we might do the Port placement surgery and for her to get a intrathecal (spinal) shot. We still don't know about Thursday until we talk with some Doctors tomorrow.
I couldn't go today because I am sick, but Emily came home and reported her tummy felt better today than it has since this whole thing began.
I will have a longer update tomorrow, but all is well for now.
Em's new hair
Happiness is a new head of thick hair.
Buddies
Dec the Halls
Emily decorating tree at Festival of Lights
Emily, Tracy, and Haley at Intuit's Winter Wonderland for kids.
Gingerbread House
Tracy and Emily at a Brownie Event
Really, we're in Hawaii.
Emily and Haley with Santa
Don't worry Haley he's nice.
Emily 1 day before Phase 4
Does anything beat Chocolate Cake?
Emily at AT&T Park
The Giants "Good luck charm"
Sunset at Tahoe
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Sisters at Tahoe Vista Beach
It doesn't get better than sisters spending time at the Lake
Thanks to Lori Smith, Emily's teacher, who participated in Relay for Life in Emily's honor.
Chris, Em, and Haley in SF
Emily Easter 2008
Happy Easter
Em in her hospital bed
7 comments:
Chris so sorry to hear that you are now sick, we hope you feel better soon. We are glad to hear that Emily's tummy is feeling better. Good luck with the scan tomorrow. We are thinking of you all. Hugs across the miles.
At least the scans have friendly sounding names like CAT and PET. Too bad there's not a FLUFFY BUNNY scan!
Adding my hugs to Emma's hugs to give you all double hugs across the miles! :-)
Hi Chris,
Theresa Downey here.
I am so sorry you have the stomach flu. That is terrible, especially when you are trying to keep Emily healthy. I have questions and concerns about Emily having her Port surgery on Thursday. It seems too soon to mess with any area around that clot....unless they can be totally sure it is gone. I believe it would take longer though, Kaeli's sure did. You don't want them pulling any lines or pushing any new ones in it if there is any chance of dislodging a clot. I am sure you know that already....I just get scared for her! Are u choosing a Port so she can go swimming and stuff. Kaeli had a Hickman. Actually the first time she fought cancer she had a pic line that was placed in the wrong area and the removed the next day(long story) They tried again, but had to put the pick line in her neck(i did not like that at all). It came loose after two weeks and she decided she didn't want any line anymore so she chose to have an IV place in her hand for chemo and blood draw every week for 2 and a half years. When she relapsed we went with the Hickman....it scared us to think she would be having tubes coming out of her chest, but it ended up being so nice and we couldn't believe that we didn't have them the first time around. Of course she had the lines again when she had her bone marrow transplant after the second relapse...you have to have the Hickman for a transplant. Anyway, it will be nice for her to swim and much easier to take baths with a Port. Good luck with all the results with the scans and x-rays. Will be anxiously awaited all her results. Take care,
Theresa
We're sorry to hear that you're not feeling well, Chris. We pray you recover quickly.
We're happy to hear that Emily's tummy is feeling better. We pray that continues!
God bless. Much love and prayers.
Love,
Auntie Diana ~^..^~ and Uncle Marty
Theresa
Don't worry too much about them taking the PICC out too early, that is why we had the Ultrasound today, to see if it is ready. I will want them to be cautious about it.
We are going to get a Mediport instead of a Hickman. Aparently both have advantages and disadvantages as I understand from Tracy. Either are better than these darn PICC lines, but also have clotting dangers so we need to keep an eye on whatever is placed.
I am so sorry to hear that you are not feeling well, Chris! Wish I could help you... don't know a thing about taxes and that's why I ended up getting help. lol! Will keep sending out good thoughts as Emily gets her PET scan tomorrow. Hang in there! Jane
Dear Chris - We're so sorry to hear you're sick and hope you are better really quickly so you can be with Emily as much as possible. We were so happy to learn that Emily's tummy is better than it has been since the beginning. We know this has been a major source of her pain and frustration with the whole process. If her tummy feels better, she will feel better all over. We will be anxiously awaiting an update on all the tests. We continue to pray for her and all of the family. We love you.
Grannie & Grampa
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