Emily is still on track to be back in the hospital this coming Wednesday. She will have her labs drawn tomorrow to confirm her hospitalization. We talked with the in-patient NP today to ask what to expect since this is our first of 4 high dose Methotrexate hospitalizations. She will be put under for her LP injection of Methtrexate. After she wakes up and recovers she will be admitted as an in-patient and transferred to a hospital room. Then she will receive high dose Methotrexate via IV for 24 hours. The she hydrates and needs to clear her system. They give her medication to speed that along. Some kids clear in 3 days, one boy who is on therapy now always takes 5 days, so until our first round is over, we don't really know what to expect for length of stay. Tracy and I will take turns spending the night with her at the hospital. I am really hoping for a private room.
We have been told the main side effect of Methotrexate is nausea, which they will treat with Zofran. While she is in the hospital she won't need to be monitored, so she can have free rein of the place, but she will have an IV pole to deal with. She's going to be bored but we'll keep her busy with all her new toys and things she received last time she was in the hospital.
I will have an update tomorrow when we get lab results to confirm that this is all happening this week. I would be surprised though if it were canceled, Emily is doing really well.
We had a very nice, and relaxing weekend.
Monday, June 9, 2008
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3 comments:
Hi Tracy and Chris,
Just wanted you to know I am reading your updates, and I am so glad that Emily is doing so well.
I will pray that her next hospital stay is short and the you get a private room!
Love,
Sue Butzow
We will be thinking of you and sending many good wishes your way!
Dear Chris & Tracy -
I'm so happy that Emily is doing so well. You talk about it in the blog, but I can also tell by Emily's happy voice and by the way you both sound over the phone. You both seem to be much less anxious, and this is a blessing. We are far from over the stress, and I know this upcoming hospitalization will not be fun, but there is so much more hope and optimism. What a relief. See you Thursday morning. Love you,
Grannie
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