Emily had her labs drawn yesterday. It was a tough lab draw for her as her favorite phleubotomist wasn't on call. They were able to get their sample of course, it was just hard emotionally for Emily. Stanford does a great job at continuity of staff for their patients so you really notice when someone is missing.
Her lab results were good, putting her ANC near 2500, which is in the range we want it. However remember that's in the range, but only on a %50 dose of chemo. That means Emily is still working on getting over her virus. Per the protocol she needs to stay on %50 dosage for one more week, and then we will step up to %75 dosage for 2 weeks and then finally back to %100 dosage in about a month. It's understandable why they need to keep the dose reduced, but it's also really frustrating that we need to. If you read the literature on being cured and reduced risk of relapse, it's important to be on %100 dosage as much as possible, and the past 2 months she has rarely been able to take that much. As much as anyone tells me things will be OK, I know too much at this point to not worry a bit about this. Next week is Emily's prednisone and IV chemo treatment on Wednesday.
Many of you may have received an email from me this week, for those of you who did please excuse the repeat ask here. A friend of mine is riding the Leukemia and Lymphoma Society Team in Training ride around Lake Tahoe in early June. He is doing it in honor of Emily and I am trying to help him with fund raising. The money raised goes to fund important medical research for Leukemia and Lymphoma. It's important, maybe people in the future won't have to go through what Emily has gone through. I can say as a parent, a %70 cure rate is OK but certainly not high enough for Tracy and I not to constantly worry. Please donate to Mike's cause if you can. We'd love to see some donations made in honor of Emily. Here is the link to donate, any amount you can.
http://pages.teamintraining.org/sj/ambbr09/mgolliday
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2 comments:
Thanks for the latest update on Emily. I have also been wondering about the reduction of dosage that has been happening lately. But, if the doctors say everything is OK, then I'm going with that! Hope the family has a wonderful weekend.
Love, Grannie
I am happy to hear that things are moving along...I know it is hard for you to be patient and not worry. I will continue to keep positive thoughts and prayers going for Emily and I will be making a donation in Emily's name to your friend's fundraising...Team in Training is an outstanding organization...I fundraised and walk a marathon in Anchorage Alaska about 8 years ago....it was an awesome fullfilling experience and my daughter and son-in-law were very active with Team-in-Training for many years before they had children....I am grateful for all the time you spend filling everyone in on Emily's progress...
Have a wonderful weekend Pepper Family.
Cathy Breit
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